Raising money for various disability specific items and equipment
After a lot of thinking and deliberation I have reluctantly decided to put on hold my challenge of running 52 marathons in 52 weeks for Lewis with immediate effect. We are all in unprecedented times and it is unrealistic and not feasible for me to be able to go out for 4 hours plus running at a time at this current time.
It is very likely that Lewis won’t return to school until September and with Oscar and Kira both being off school for the foreseeable future as well, and us having to do their home schooling on top of everything else we have to do, then there is simply not enough time to fit it in at the moment.
We have also decided to not have any of Lewis’ wonderful carers in at this point in time and for the foreseeable future due to the virus, so we will be having to do everything for Lewis on our own 24-7 which is going to be extremely testing and demanding for us, but it is the right thing to do in the current climate.
Oct 2019-20 - 52 Marathons in 52 Weeks. Full Statement more details
Hi, my name is Lewis Herbert
Thank you so much for visiting my site.
During 2015 we raised enough money for my dream of a wheelchair accessible/sensory garden at home. Thank you so much to each and everyone of you who donated towards my new garden it's absolutely amazing, and I can now access my garden in my wheelchair and spend quality time together with my Mum, Dad, sister and brother all together in our back garden, something which I have never been able to do. Full details about the sensory garden can be found in the fundraising projects section of the website.
My Mum and Dad have decided to continue fundraising for me as unfortunately due to my complex disability I am always going to need various disability specific items and equipment which are not available to me through standard NHS provision and statutory services. The majority of the items are a necessity due to my extremely complex disability and condition.
Current Fundraising Projects: Items we are currently raising funds for..
For full details of these fundraising project please click here
November 2018 Update..
We are in touching distance of having enough funds to have a new loft space conversion which would allow storage of all of Lewis’ vast amount of medical supplies, continence products and disability specific equipment etc. This loft space conversion would allow the necessary space for a single bed to be situated in Lewis’ downstairs bedroom for us and his carers so that we can monitor his seizures safely overnight and provide him with all the complex care he needs overnight (Oxygen and VNS therapy etc). As he is getting older being able to be with him overnight in his room is now vital and it will allow us to be able to carry on looking after him at home for as long as possible.
Lewis is at risk of SUDEP (Sudden Unexpected Death in Epilepsy) http://sudep.org/. So having us near him overnight could literally save his life. It really is that black and white it could be a matter of life or death for him (Sorry to be blunt but that’s the reality of it).
I know so many of you have already done so much for Lewis and our family and your generosity and support has been incredible and overwhelming. But if there is anyone out there who would be interested in sponsoring me for my personal challenge and helping us towards our target then we would be forever grateful.
Previous Fundraising Projects successfully achieved
Please find below items which we have already raised the funds for and which are already making a huge difference to my quality of life.
Lewis Robert Herbert was born on the 12th November 2002 at 12:20am weighing a healthy 8.2lbs.
After keeping us waiting for a 34 hour labour and being rushed out by the consultant as he was getting distressed. Our 1st baby was here and we couldn't wait to start our family life. The next chapter for Gary & I. He was the most beautiful thing we had ever seen. We had so many dreams and hopes for our little boy. Read more.. Our Special Boy
Raising money for various disability specific items, equipment, and home adaptations/alterations which are NOT available to me through standard NHS provision and statutory services.
To get involved and help fundraising for Lewis please contact us