Life for Lewis Appeal

Raising money for various disability specific items and equipment


Jim Hawkins Milton Keynes 10km Relay Marathon Run

LATEST NEWS:
May 2024 - Milton Keynes 10km Relay Marathon Run on 6th May 2024

Jim Hawkins, the Clubs and Community Manager for Steelbacks in the Community, is running a 10 km relay leg of the Milton Keynes Marathon on May 6th to raise funds for Lewis. May 2024 - MK 10km Relay more details

MK 10km Relay

Welcome To Lewis' Website

Life for Lewis Appeal

Hi, my name is Lewis Herbert

Thank you so much for visiting my site.

During 2015 we raised enough money for my dream of a wheelchair accessible/sensory garden at home. Thank you so much to each and everyone of you who donated towards my new garden it's absolutely amazing, and I can now access my garden in my wheelchair and spend quality time together with my Mum, Dad, sister and brother all together in our back garden, something which I have never been able to do. Full details about the sensory garden can be found in the fundraising projects section of the website.

My Mum and Dad have decided to continue fundraising for me as unfortunately due to my complex disability I am always going to need various disability specific items and equipment which are not available to me through standard NHS provision and statutory services. The majority of the items are a necessity due to my extremely complex disability and condition.

Current Fundraising Projects: Items we are currently raising funds for..

  • House Adaptations/alterations. Any items and works required to help me safely access the downstairs of my house in my wheelchair as I'm getting bigger and so is my wheelchair!
  • New Specially Adapted Manual Wheelchair. As I’m growing and my scoliosis/curvature of the spine is deteriorating my existing wheelchair is no longer suitable for my needs.
  • Adapted Motability Vehicle. Deposit for a suitable wheelchair accessible and fully adapted Motability vehicle.

Raising money for various disability specific items and equipment Life for Lewis Appeal

For full details of these fundraising project please click here

Raising money for various disability specific items and equipment Life for Lewis Appeal - Raising money for various disability specific items and equipment

Previous Fundraising Projects successfully achieved
Please find below items which we have already raised the funds for and which are already making a huge difference to my quality of life.

  • Loft Space Conversion for medical supplies storage (Target achieved and fitted) - Approx cost = £34,000
  • Wheelchair Accessible Front Door with low threshold fixed ramp access (Target achieved and fitted) Approx cost - £1,300
  • Replacement floor mats for sensory room – (Target achieved and item supplied) - 2k
  • SAT's monitoring machine and accessories (Target achieved and item supplied) Approx cost = £900 
  • Multi-Sensory Room in my house (Target achieved and items supplied) - Approx cost = £15,000
  • Wheelchair Accessible/Sensory Garden (Target achieved and item supplied) - Approx cost = £25,000
  • New suitable manual Chunc wheelchair (Target achieved and item supplied - Approx cost = £5000
  • New suitable seat for my Mustang electric wheelchair (Target achieved and item supplied) - Approx cost = £1000
  • A suitable ipad with mounting wheelchair arm/s and sensory/cause and effect applications (Target achieved and item supplied) - Approx cost = £1100
  • Eye gaze communication system - Including look to learn and Sensory Eye FX software (Includes an all-in-one PC, screen, USB eye tracker,  and mounting trolley on wheels) (Target achieved and item supplied) - Approx cost = £4000
  • Deposit for a suitable wheelchair accessible and fully adapted Motability vehicle (Target achieved and item supplied) - Aprox cost = £12,000
  • Therapy/Companionship Dog and appropriate training (To be my companion and best friend, and to sit on my lap and also alongside me in my wheelchair and soft room (so I can feel it's warmth), this has a calming influence on me).

Lewis using the Eye-Gaze System at School
   

Life for Lewis Appeal


Our Special Boy.. Lewis Robert Herbert

Lewis Robert Herbert was born on the 12th November 2002 at 12:20am weighing a healthy 8.2lbs.

After keeping us waiting for a 34 hour labour and being rushed out by the consultant as he was getting distressed. Our 1st baby was here and we couldn't wait to start our family life. The next chapter for Gary & I. He was the most beautiful thing we had ever seen. We had so many dreams and hopes for our little boy. Read more.. Our Special Boy



Raising money for various disability specific items, equipment, and home adaptations/alterations which are NOT available to me through standard NHS provision and statutory services

To get involved and help fundraising for Lewis please contact us

Life for Lewis Appeal

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