Raising money for various disability specific items and equipment
With Lewis' 18th Birthday approaching quickly (12th Nov 20) and with him desperately needing some new bespoke replacement mats for his sensory room at home, we have decided to see if any of our wonderful L4L supporters would be willing to complete the L4L5kCHALLENGE to help us towards the cost of replacing his mats which are now 5yrs old, worn, and are not helping his scoliosis (curvature of the spine) as he sinks into them, plus they are really difficult to us and his carers to walk on now. He requires some firmer bespoke mats for his sensory room as soon as possible.
So the challenge is to either Walk, Run or Bike 5k and then please donate £5, as well as then nominating 3 of your friends to complete the challenge as well (tagging the Life for Lewis Appeal in your post @lifeforlewisappeal).
Due to the current situation with COVID the fundraising event we were going to do to mark his 18th year will no longer take place, so this is the replacement fundraiser for the cancelled event.
Please get involved if you can as it would really help us towards the cost of his new firmer bespoke sensory mats which are desperately needed.
Many thanks all.
Team Herbert xx L4L 5k Challenge more details
Hi, my name is Lewis Herbert
Thank you so much for visiting my site.
During 2015 we raised enough money for my dream of a wheelchair accessible/sensory garden at home. Thank you so much to each and everyone of you who donated towards my new garden it's absolutely amazing, and I can now access my garden in my wheelchair and spend quality time together with my Mum, Dad, sister and brother all together in our back garden, something which I have never been able to do. Full details about the sensory garden can be found in the fundraising projects section of the website.
My Mum and Dad have decided to continue fundraising for me as unfortunately due to my complex disability I am always going to need various disability specific items and equipment which are not available to me through standard NHS provision and statutory services. The majority of the items are a necessity due to my extremely complex disability and condition.
Current Fundraising Projects: Items we are currently raising funds for..
For full details of these fundraising project please click here
November 2018 Update..
We are in touching distance of having enough funds to have a new loft space conversion which would allow storage of all of Lewis’ vast amount of medical supplies, continence products and disability specific equipment etc. This loft space conversion would allow the necessary space for a single bed to be situated in Lewis’ downstairs bedroom for us and his carers so that we can monitor his seizures safely overnight and provide him with all the complex care he needs overnight (Oxygen and VNS therapy etc). As he is getting older being able to be with him overnight in his room is now vital and it will allow us to be able to carry on looking after him at home for as long as possible.
Lewis is at risk of SUDEP (Sudden Unexpected Death in Epilepsy) http://sudep.org/. So having us near him overnight could literally save his life. It really is that black and white it could be a matter of life or death for him (Sorry to be blunt but that’s the reality of it).
I know so many of you have already done so much for Lewis and our family and your generosity and support has been incredible and overwhelming. But if there is anyone out there who would be interested in sponsoring me for my personal challenge and helping us towards our target then we would be forever grateful.
Previous Fundraising Projects successfully achieved
Please find below items which we have already raised the funds for and which are already making a huge difference to my quality of life.
Lewis Robert Herbert was born on the 12th November 2002 at 12:20am weighing a healthy 8.2lbs.
After keeping us waiting for a 34 hour labour and being rushed out by the consultant as he was getting distressed. Our 1st baby was here and we couldn't wait to start our family life. The next chapter for Gary & I. He was the most beautiful thing we had ever seen. We had so many dreams and hopes for our little boy. Read more.. Our Special Boy
Raising money for various disability specific items, equipment, and home adaptations/alterations which are NOT available to me through standard NHS provision and statutory services.
To get involved and help fundraising for Lewis please contact us