Life for Lewis Appeal Fundraising Projects

Raising money for various disability specific items and equipment

Items we are currently raising funds for..

Current Fundraising Projects, raising funds for the Life for Lewis Appeal

Raising funds for the Life for Lewis Appeal Current Fundraising Projects

  1. Re-vitalise sensory garden - We would like to fundraise to re-vitalise Lewis' wheelchair accessible sensory garden which he loves, but it is now 8yrs old and is worn and needs repairing doing up to bring it back to somewhere near it's original state.
  2. New black out blinds - We would also like to try and raise some money for some new black out blinds for Lewis' sensory room as his existing ones have broken.
  3. Wheelschair base frame - A suitable wheelchair base/frame and powerpack/attendant control (not funded on the NHS) for his new moulded wheelchair
  4. A new electric wheelchair - so we can take Lewis on walks and day trips which we currently can't do as his manual wheelchair is too difficult to push for any long distances.
  5. A holiday as a whole family - This hasn't been possible for 6yrs.
  6. Finance and Health and Welfare Joint Deputyship Annual Costs - £700 per year!.
  7. Outside Equipment Storage An outside building in the garden to store all of his disability equipment when it's not being used.
  8. Track Hoists - 3 x New Ceiling Track hoists as these are old (14+years) and can be unreliable.
  9. Portable Hoist for when we are away from the house
  10. New iPad - We would also like to be able to get Lewis a new ipad as his old one is now broken and doesn't work. He loves to watch films and listen to music when we are out and about or when he is in his wheelchair, but he can't do that at the moment unfortunately.

Current Fundraising Projects, raising funds for the Life for Lewis Appeal Raising funds for the Life for Lewis Appeal

I would be so very grateful if you were able to help me try and reach my current targets and dreams. 

Online donations can be made using GoFundMe..

Alternatively if you wish to donate or raise funds to the Life for Lewis Appeal then please get in touch through the Contact Page

Best wishes and much love,
Gary, Lexi and Lewis x

Recently completed projects..

House Adaptations/alterations - Any items and works required to help me safely access the downstairs of my house in my wheelchair as I'm getting bigger and so is my wheelchair!. Also any necessary adaptations/alterations required in my house, to allow my Mum and Dad and carers to continue to look after me at home due to my complex condition and severe seizures.

A New Specially Adapted Manual Wheelchair. As I'm growing and my scoliosis/curvature of the spine is deteriorating my existing wheelchair is no longer suitable for my needs. I require a new wheelchair with the necessary postural support and adaptation to suit my changing posture and this will enable me to sit comfortably and safely.

Adapted Motability Vehicle. Deposit for a suitable wheelchair accessible and fully adapted Motability vehicle.

New Loft Space Conversion in my house, this allow storage of my vast amount of medical supplies, continence products and numerous disability specific equipment. This loft space conversion allows the necessary space for a single bed to be situated in my downstairs bedroom so that my seizures can be monitored safely overnight by my parents and carers. 

This allows my mum and dad and/or carers to be close to me overnight to provide oxygen and VNS therapy, as well as looking after me and making sure I'm safe whilst having seizures, this could potentially be life saving for me, as I am at risk of SUDEP (Sudden Unexpected Death in Epilepsy)

Having this additional storage space in our loft allows space for a single bed in my downstairs bedroom for my mum, dad or carers to safely provide vital overnight care and therapy during and after my seizures, and this allows me to continue to be able to be looked after at home.

New Wheelchair Accessible Front Door with Low Threshold and suitable fixed ramp to allow safe access to and from my house as my Wheelchair has got bigger as I'm growing!.

New replacement floor mats for my sensory room as they have worn and will need replacing soon as it's becoming more and more difficult for my mum and dad, and carers to safely walk on them to provide me with all my care needs.

SAT's monitoring machine and accessories (SpectrO2 30 - WW1030 Handheld Pulse Oximeter with Alarms) so that my Mum and Dad and Carers can keep a close eye on my oxygen levels and pulse during and after seizures. Back to top

Current Fundraising Projects

Current Fundraising Projects

Back to.. Life for Lewis Fundraising Projects

Below are some of the projects that have been held and are currently planned.. click here to see all the projects

I have received my new wheels!!!!.....

I am delighted to let you all know that I have now received my new Chunc Manual specially adapted wheelchair and Mustang Electric chair!

Both my chairs are so comfortable as they are specially adapted to my complex needs and scoliosis.
Read more.. I've got new wheels

Wheelchair Accessible Sensory Garden

During 2015 we raised enough money for my dream of a wheelchair accessible/sensory garden at home.

My garden is now fully completed and it is absolutely amazing.

I can now access my garden in my wheelchair and spend quality time together with my Mummy, Daddy, sister and brother all together in our back garden, something which I was never been able to do in the past.

Thank you so much to everyone who donated towards my new Sensory garden I will be eternally grateful to all of you x 

Read more.. Sensory Garden

Eye Gaze Communication System for Home

“Yehhhh I can now communicate with my Eyes!. My new eye gaze communication system is so much fun, I can use lots of different cause and effect software and when I look and focus on the screen with my eyes something always happens which is absolutely amazing.
Read more.. Eye Gaze Communication System

Lewis Multi Sensory Room Now Complete

We are delighted to let you all know that Lewis' multi sensory room is now finished! We wanted to thank each and every one of you that has helped this happen for Lewis.

He absolutely loves it and is so relaxed, calm and happy when using it.
Read more.. Sensory Room

Summer 2015 - Steven Crook Runs4Funds Charity Season for Northants CCC

Runs4Funds is a fundraising initiative founded by Northamptonshire Steelbacks all-rounder, Steven Crook, that was born following an emotional meeting with two inspirational parents of Northampton-born, Lewis Herbert. 

Lewis and his family’s story was covered in the local newspaper, where they spoke of their efforts to recruit fundraisers to help raise enough money to provide much-needed facilities and equipment for 12 year old LGS-sufferer, Lewis.

Throughout the 2015 season, Steven supported the A Life For Lewis Appeal by helping raise nearly £5,000 towards a much needed sensory garden for Lewis to enjoy. Read more.. Summer 2015 - Steven Crook Runs4Funds

Fundraising Challenges by some very special friends

Personal challenges people have done for Lewis over the years.. Read more.. Various Personal Fundraising Challenges

To get involved and help fundraising for Lewis please contact us

Life for Lewis Appeal Fundraising Projects

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