All the latest news and forthcoming events from the Life for Lewis Appeal will appear here.
I have decided not to do a main event for the Life for Lewis Appeal in 2019, instead the only challenge I will be doing is the small matter of trying to run 1600 miles in a year (100 miles for each year of his life so far), as well as not having any alcohol for a whole year.
The Final Analysis
My final year long running graph for my challenge for Lewis. I managed to run a total of 1835 miles in the year. Completed in 156 runs, 246hrs (10 days) total running time, at an average of 11.76miles every run, and 60 half marathons (more than one a week). Quite proud of that to be honest.
JustGiving online donations - click here
June 2019: Herby’s Final Furlong to the Hart (1600th and final mile)
June 29th: I did it!, I really don’t know how, but I did!. 1600 miles ran in 10 months (2 months ahead of schedule and in only 132 runs (An average of 160 miles every month, and 40 miles every week, and an average of 12miles per run!)
There have been plenty of really dark moments and countless self-doubts on a weekly basis about whether I would be able to get to, or get anywhere close to my mileage target. It has quite simply been the hardest and most relentless thing I have EVER done in my life, and my body has been in absolute bits!.
Thank you to all those who have supported me and given generously to Lewis’ appeal, it really has kept me going and it will never be forgotten. Actually feeling quite proud of my achievement as well as extremely emotional!. Can’t quite comprehend it all at the moment, but once it’s sunk in it will be an achievement I will be able to look back upon with a tremendous amount of pride I'm sure.
#1600milesinayeardone #132runs #214hrsrunningtime #160milesaveeverymonth #40milesaveeveryweek #12milesaveperrun #58halfmarathons #4marathons #completedin10months #lifeforlewisappeal
June 2019: My challenge of running 1600miles in a year came to an end at The Old White Hart on Sat 29th June. Thanks to everyone who joined me to celebrate reaching my running target. Having my friends and family join me in running the last mile, and being at the finish line was incredibly special to me.
Thank you so much Earl Charles Spencer for all your support and for taking time to do this congratulations video, it means a tremendous amount to me.
June 27th: It’s going to be an emotional few days!. This challenge has been the hardest thing I’ve EVER done. It’s taken everything I have to complete (Nearly!) #1600milesinayear #2milesleft #Saturday #Lewis #noalcoholforayear #Swanny (see video below)
June 24th: Another 11 Mile run. Back to back, Ouch!. 2 MILES LEFT! 4 days rest now before Sat. It’s the Final Countdown! #1598milesdone #2milestogo
June 20th: Another 10 Mile run. Back to back, horrible!, body a mess and swallowed a fly! It’s the Final Countdown! #1576milesdone #24milestogo
June 23rd: Sunday morning 11 Mile run. It’s the Final Countdown! #1587milesdone #13milestogo
June 19th: 10 Mile run. It’s the Final Countdown! #1566milesdone #34milestogo
June 17th: Half marathon (58th of my challenge in 9 and a half months!) It’s the Final Countdown! #1556milesdone #44milestogo
June 14th: Another 11 mile run. Sore back and feeling emotional!. It’s the Final Countdown! #1543milesdone #57milestogo
June 12th: 11 mile run. Another one ticked off. It’s the Final Countdown! #1532milesdone #68milestogo
June 10th: 11 mile run. Heart rate got up to 228bpm on mile 4 which is a little concerning! (Hope it was my watch playing up!). Toe nail hanging off as well!. It’s the Final Countdown! #1521milesdone #79milestogo
June 7th: Another 14 mile run. Quite frankly it was horrendous!. Was like a drowned rat, come rain or shine!. Body broken, but on the plus side I’m down to double digits left, 90 miles to go!. It's the Final Countdown! #1510milesdone #90milestogo
June 5th: Another 14 mile run. Really sore and stiff legs, and body screaming at me to stop!. Running on empty ! The closer I get the further it seems away!. It’s the Final Countdown! #1496milesdone #104milestogo
June 3rd: Another 14 mile run. It’s the Final Countdown! #1482milesdone #118milestogo
June 2nd: Kicked off June with a 14 mile run. It’s the Final Countdown! #1468milesdone #132milestogo
31st May: Decided last minute to do a 14 mile run today to take me to 200 miles ran in May! Have done
12 13 x half marathons and one full marathon in May, a total of 186 200 miles done in May. In total thats 1440 1454 miles done, only 160 146 miles to go! If there is anyone who would like to sponsor me who hasn't got around to doing so then it would really help give me that extra boost for my final push. Many thanks x
May 26th: 5th Half Marathon in 7 days!
May 24th: Managed to run 4 x half marathons in 5 days this week for the first time ever!
May 13th: 10 PB’s achieved on today’s run. Quickest ever half marathon 1hr 38min (eventually a sub 1hr 40 yehhh!). 5K 20min 41s, 10k 43m 59s. Actually feel quite proud of myself for how far I’ve come with my running. When I started running 3yrs ago I couldn’t do 1/4mile without having to stop.
May 6th: Ran the Milton Keynes marathon.. that's another 26.2 miles ticked off..Milton Keynes Marathon photos
April 2019: Another month ticked off.. 190 miles ran in 14 runs. A total of 1254 miles done, ONLY 346 miles to go in 4 months. Just realised I’ve done 40 half marathons in 8 months!
April 19th: Did my Fastest ever Marathon today 3hrs 47mins. Was ok till mile 18 then hit the wall, last 8 miles were hard work. I can confirm that 26.2 miles is a long way!
April 13th: Just been out and done a PB for 5K (21mins) 10k (45mins) and 15k (1hr 10mins), had planned to do a half marathon but completely ran out of gas!, had to stop at 10miles, legs had gone and was nearly sick!. Physically don’t think I can go any faster than that. How on earth do people average under 7 minute miles over a half marathon or longer!
Lewis made the BBC !
"What an amazing thing this Northampton dad is doing to help his disabled son." BBC News East of England
March 2019: 163 miles ran in 15 runs. A total of 1064 miles done.. ONLY 536 miles to go !!
Encouragement from a random stranger: Saw a man with both legs amputated in a wheelchair pushing himself as well as carrying loads of shopping bags, he shouted out "Keep going Buddy you can do it". This spurred me on to achieving PB's for 5k (22min 48secs), 10k (46min 29sec) and 10 miles (1hr 16mins 55secs). If he can get up every morning and carryon with life then I can run a few miles, no comparison, totally inspirational, bless him. Never take what you have for granted folks!
Encouragement from Swanny:
Mid-March: 1000 miles update.. 1000 miles completed!. #85runs #149hoursrunningtime #11milesplusperrunaverage #138kcalories #1600milesinayear #noalcoholforayear #lifeforlewis! Watch Gary's video update on Twitter
February 2019: I am now half way through my double challenge of trying to run 1600 miles in a year, as well as not having any alcohol for a year for Lewis. I have managed to run 901 miles in 6 months and haven't touched a drop of alcohol for 6 months. Massive thank you to those who have sponsored me already it has really kept me going. I genuinely don't know if I will be able to complete the challenge (I have massive doubts every time I go out and every week!) as it's just so relentless and my body is in bits and screaming at me to stop!. If anyone is willing to sponsor me it would be so appreciated and would help drive me forward for the "second half" of my challenge, which is going to be even tougher than the first. It's really hard to describe how difficult it is to keep running this amount of miles (33 on average) week in week out, as there is just no time to rest the body, it's relentless and absolutely brutal and the toughest thing I've ever done by a country mile!. Please help me drive forward (slowly!) into the next six months by sponsoring me and in turn donating to Lewis' appeal x.
February 2019 - ankle update. I went to see the brilliant Lee Daggett at Move4 Physio this week about the ongoing issue with my ankle. He was extremely approachable and very knowledgeable and I would highly recommend him to any of you out there who need to see a Physio for whatever reason. He is trying to help me get through the second half of my ridiculous challenge. This is his assessment of the current situation with my ankle - Move4 Physio report - click here
January 2019: Half way there!, 800 miles completed. With the pain my ankle/foot is giving me every step I genuinely don’t know if I will be able to complete the challenge but I will give it everything I have, even if I have to crawl. Who will “win” the body or the mind!. Any support in the way of sponsorship really would help keep me going and would be very much appreciated.
December 2018: I am two and a half months into this challenge and it’s by far the hardest thing I have every done, it’s relentless and painful but I am going to give it all I have to complete the challenge by Sept 2019. I have so far managed to run 612 Miles in four months (only 988 to go!) and have not touched a drop of alcohol for two and a half months.
JustGiving online donations: Running 1600 miles and sober for a year
Lee Daggett at Move4 Physio - Ankle Report
"Gary’s body has been through the mill over the last few years, but considering the amount of mileage he’s covered in that time, it’s held together brilliantly with only a couple of minor blips.
I saw Gary this week, as it seems he has hit a slight speed bump on route to achieving his goal of running 1600 miles in a year.
Gary has been struggling with ankle pain, that is slowly getting worse week after week, as the relentless running programme continues. The main cause of this pain is from 18 months ago when Gary ruptured the anterior talofibular ligament in his left ankle. He’s had minimal issues with his ankle since that point but the sheer load he is currently putting through his legs is highlighting where his weak links are.
His ankle joint is very stiff which is starting to alter the mechanics of how he runs. His ankle also has a decent amount of instability following the injury 18 months ago, and due to his lack of physio input over that time, his ankle is now very weak. We have given him some strength exercises to build it back up to where it needs to be. This is going to prove difficult, given he still has to run 33 miles per week to keep up with his challenge, but is something Gary is committed too.
I’m confident if Gary manages to increase the strength and mobility of his ankle, this will help to reduce his pain and allow him to complete his challenge. Throughout that time, we will see him from time to time to keep him fighting fit!"
As previously mentioned we are not holding any fundraising events for Lewis in 2019 (so know buying of raffle tickets!), as I'm doing this double challenge, so if there is anyone who would be willing to sponsor me and donate to Lewis' appeal it would really help me keep going, especially with the pain I'm in with my ankle!. This is the JG page I am using for my double challenge.
Thank you very much,
Cheers Gary x
JustGiving online donations: Running 1600 miles and sober for a year
Massive heartfelt thank you to David Paynter at Payntr Cricket for sponsoring these absolute beauties for the next leg of my running challenge. Although designed for cricket they have the technology of a light-weight running shoe, and are so comfortable and supportive, I am going to use them in the next leg of my 1600 mile running challenge for Lewis.
For all you cricketers out there Payntr cricket shoes are the best and most advanced on the market. With the new season approaching please have a look at www.payntr.com so you can spend your season in comfort.
JustGiving online donations: Running 1600 miles and sober for a year
The Challenge: Running 1,600 Miles and Going Sober for 1 Year
With Lewis approaching the age of 16 (Nov), I have decided to set myself my most demanding personal challenge ever. Lewis fights every day to stay alive and is in his 16th year of doing so.
I have just promised him that I will attempt to run 1600 miles in a year (Sept 18-Sept 19), which is 100 miles for each year of his life.
This will equate to an average of 133 miles EVERY month of the year, 33 miles EVERY week, and an average of 5 miles approx EVERY day for a whole year. I honestly don’t if I am going to complete the miles in a year, as there is a lot of luck involved as regards injury, purely due to the sheer volume of miles involved. But I am going to give it EVERYTHING I have to complete 1600 miles in 1 year.
As well as this I have just pledged to him that I will go sober for 1 whole year (3rd Sept 2018 - 4th Sept 2019). Those who know me well know that alcohol is my big achilles heel and something which affects my mental health greatly. This challenge alone is going to be extremely difficult for me to stick to.
This double challenge will be by far the hardest and most challenging thing I have done to date, but I’ve promised Lewis so there is no going back now. Even this doesn’t get anywhere near to what Lewis endures on a daily basis.
I know for a fact that both challenges will help me enormously with trying to cope with all the challenges and obstacles the next year is going to bring us, as he turns from 16yrs to 17yrs and from a child to an “adult”.
I would be extremely grateful if anyone wishes to sponsor/donate to my double challenge to help me on my way!. Any money raised will go to the Life for Lewis Appeal.
This is the JustGiving page specifically for this double RUNNING SOBER challenge
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After a lot of thinking and deliberation I have reluctantly decided to put on hold my challenge of running 52 marathons in 52 weeks for Lewis with immediate effect. We are all in unprecedented times and it is unrealistic and not feasible for me to be able to go out for 4 hours plus running at a time at this current time
It is very likely that Lewis won’t return to school until September and with Oscar and Kira both being off school for the foreseeable future as well, and us having to do their home schooling on top of everything else we have to do, then there is simply not enough time to fit it in at the moment.
We have also decided to not have any of Lewis’ wonderful carers in at this point in time and for the foreseeable future due to the virus, so we will be having to do everything for Lewis on our own 24-7 which is going to be extremely testing and demanding for us, but it is the right thing to do in the current climate.
Read more.. Oct 2019-20 - 52 Marathons in 52 Weeks. Full Statement
We would be so grateful if everyone who has supported the Life for Lewis Appeal over the past few years take a couple of minutes and leave us a comment on our supporters comment page, it will be lovely for us to be able to look back on the comments and cherish and have a record of how utterly amazing people have been towards Lewis and our family, many thanks Gary and Lexi xx Read more.. Supporters Comments
Links to various newspaper reports about the Life for Lewis Appeal..
Read more.. What The Papers Say
Four Northampton College Business students, Olivia Stokes, Lewis Knowlton, Isabelle Bull and Maria Sirghi organised a 5K Park Run in Abington Park as part of their business studies course.
Total Raised: £260
Read more.. Feb 2020 - Race for Lewis Park Run
LIFE FOR LEWIS 2020 TEAM CHALLENGE EVENT TO CELEBRATE LEWIS’ 18TH YEAR!.
TOUGH MUDDER CLASSIC MIDLANDS 2020 TEAM CHALLENGE.
Saturday 13th June 2020. 8-10 Miles with 25 different Obstacles.
Tough Mudder organisers have postponed this event due to the Coronavirus, the proposed new date looks likely to be Saturday 22nd August. Tough Mudder will contact all ticket holders directly by 27th March to provide more details and outline the options available. In the meantime please contact Gary via Facebook as too whether you can or can't make the 22nd August.
In 2020 Lewis will enter his 18th year (Finger Crossed!). This will be a real landmark for him and us as a family and it is truly remarkable that he has got to this age with all that he has had to cope with over the years with his severe and extremely disability. He literally fights each day to stay alive. Read more.. June 2020 - Tough Mudder Team Challenge
Happy Birthday 17th Birthday to Lewis from Graeme Swann, Henry Blowfeld and the whole crowd at the Derngate Theatre.
Read more.. Nov 2019 - Swanny and Blowers sing Happy Birthday
Words from Lewis..
A massive thank you to Kay and Chris for doing this for me. It really was such a kind, thoughtful and caring thing to do, and the funds really will help me be able to get the equipment I require due to my due severe disability. A big heartfelt thank you to each and everyone of their wedding guests who donated to my Life for Lewis Appeal it’s extremely appreciated. I hope you all had lots of fun on the day and didn’t drink too much!!!, Lots of Love Lewis xxx. Read more.. Sept 2019- Wedding Day Donation.. Kay and Chris Knight
Nuovo Italian restaurant in Abington street, Northampton raised an wonderful £200 for the Life for Lewis Appeal during their Negroni week back in June. For a week they created 6 different Negroni drink variations for their customers and a percentage of each sale went to Lewis’ appeal.
We would like to say a massive heart felt thank you to Stewart and Charlie Wright, and the rest of the NUOVO team for doing this for Lewis, it was extremely kind and thoughtful of you and extremely appreciated. Big thank you also to all those who sampled a Negroni during the week Read more.. June 2019 - Negroni Week 24-30th June
As part of the 1600 miles in a year challenge, I decided to go for a stroll around Milton Keynes.. it just happened to be the Milton Keynes Marathon !
Thank you everyone for your really kind and supportive messages for my MK Marathon today. It’s really kind and very thoughtful of you all. I really struggled today between miles 18 and 26.2 and was just pleased to get round in one piece to be honest!, legs just didn’t want to work today for some reason!. Finished in 4hrs 34secs, but my goodness it hurt!
These pictures fully sum up how I was feeling at the different stages of the MK Marathon on Monday. Not difficult to tell which photo was at 23 miles!. Read more.. May 2019 - MK Marathon 2019
Lloyd Groom arranged a golf day for the Life for Lewis Charity Golf Day Friday 12th October 2018.
We are delighted to announce that the "Life for Lewis Charity Golf Day 2018" raised and incredible £7,200. Thank you to each and everyone of you who supported the event, we really cannot comprehend everyone’s support and generosity towards Lewis and our whole family xx Read more.. Oct 2018 - Charity Golf Day
St. Anthony's School raise a wonderful £210 for the Life for Lewis Appeal playing in a 3-a-side footie tournament. Read more.. Sept 2018 - St. Anthony's Football Tournament
Gary Rock abseils 418ft down the Northampton Lift Tower and raises an amazing £800 for the Life for Lewis appeal.
Read more.. Sept 2018 - Abseiling Northampton Lift Tower
On 8th September, 2018, Maya Warren and Tamzin Ford raised an amazing £672.00 (AND SMASHED THEIR £10/MILE TARGET) for the Life For Lewis Appeal by completing the 100km (62 mile) Thames Path Challenge from Putney Bridge to Henley-on-Thames. Read more.. Sept 2018 - Thames Path Challenge
Old White Hart 5K Fun Run Raises £2,500 for the Life for Lewis Appeal.
We just wanted to say a massive thank you to each and everyone of you who came and supported our fun run for Lewis on Sunday. You all looked amazing in your costumes and we really hope you had as much fun as we did. We are delighted to announce that we managed to raise an incredible £2,500 which is simply wonderful, thank you all so much, the OWH team x
Lexi Herbert Parker: Bloody hell! It’s amazing! Totally gobsmacked! Xxx Read more.. June 2018 - Father's Day Fun Run!
Nick Harvey-Bain (Chief organiser) said;
“The Rat Race Dirty Weekend is the biggest and best obstacle race in the world. Located at Burghley House near Peterborough, the course consists of a gruelling 20 mile race over 200 obstacles including water, tunnels, walls, and the worlds longest monkey bar obstacle. A team of 5 of people, Nick Harvey-Bain, Simon Church, Jason Kenney, Ben O’Donegan and Bob Gregitis completed the course in 6 hours and 27 minutes and in doing so raised over £1500 for the Life for Lewis charity”. Read more.. May 2018 - Rat Race Dirty Weekend
CALLING ALL RUNNERS !! - LOOKING FOR A CHALLENGE AND TO GET FIT IN 2018? - THEN LOOK NO FURTHER - 6 MONTHS TO TRAIN!!!
Right all you lovely people, my main fundraising event of 2018 is the Oakley (Bedford) 20 mile run on Sunday 18th March.
Read more.. March 2018 - Oakley 20 Mile Run
Me and my big mouth!, ever had the feeling you've bitten off more than you can chew!.
25 November 2017 a day to remember..
I did it !, I really don't know how, but I've managed to run 200 miles in November (Completed in 13 runs at an average of 15.42miles per run). It was all done for you Lewis, I love you so much and I will always be there for you fighting your corner.
Thank you so much to all those who have already sponsored me I really do appreciate your support, and if anyone else wishes to sponsor me then that would be amazing and extremely appreciated. #AndRELAX
Much love, an exhausted and emotional Gary xx
Read more.. Nov 2017 - 200 Mile Marathon Challenge
Massive thank you to David Liddle and Margaret Liddle, and everyone from Kerridge Commercial Systems who helped raise an amazing £250 towards Lewis’ appeal for their dress down day, and guess the weight of the pumpkin last Friday (3rd November 2017). Thank you, we appreciate it so much.
Lots of love the Herbert’s xx Read more.. Nov 2017 - Kerridge Commercial Systems
On their wedding day.. Bill & Tina Scott raised an incredible £800 for the Life for Lewis appeal
Wedding Day speeches from friends of the Bride & Groom..
Read more.. Sept 2017 - Wedding Day Donation.. Bill & Tina Scott
What: Charity Band Day 2017
When: 27th August 2017, 3pm till Late. FREE Entry
Where: Old White Hart, Cotton End, Northampton. NN4 8BS
The Sun was out.. the Beer flowed.. and the Bands banged out some fine tunes !
What We said..
"Charity band day. Wow! What an amazing afternoon! Thank you again to everyone who came out to support us! We truly are so grateful to you all! It was such a wonderful day with all the amazing music! Tony Young you are such an amazing friend! ! Thank you again!" Read more.. Aug 2017 - Charity Band Day (Old White Hart)
No more smelly trainers.. get some Life for Lewis flip flops
Read more.. Life for Lewis Flip Flops
For a small donations these could be yours.. Read more.. Merchandise Wrist Bands and Pens
Ready Steady Bake..
Kezia Parker and Jacob Chambers arranged a Bake Sale at Hackleton Primary School on 6th July 2017 selling Cakes, Biscuits and Sweets. Read more.. July 2017 - Bake Sale Hackleton Primary School
I've got a brand new website designed for mobile devices.
It is a fully mobile compliant responsive web design and can be viewed on desktops, tablets and mobile phones. Read more.. May 2017 - New Website !
"Right, I've been sat here for an hour trying of think of what to say to sum up today. Words will never be enough to express how we really feel about you all!. I truly know how tough it must have been for you all to achieve what you have today!. It hurts!, it really hurts, and for you all to want to do that to help Lewis is mind boggling!. We are so incredibly lucky to have you all in our lives, and for you all to want to support and help him is simply amazing."
Love you all xx
Gary and Lexi xx
Read more.. Feb 2017 - Silverstone Half Marathon
Mummy and Daddy have decided to run the Northampton half marathon on Sunday 4th Sept 2016 to try and raise money towards my appeal.
This is going to be a massive challenge for them both, as the furthest Mummy has run is 5k, and the furthest Daddy has managed is about half a mile!. Read more.. Sept 2016 - Northampton Half Marathon Challenge
Hanging out with Swanny at the Cricket! Read more.. Summer 2016 - Meeting Cricketing Superstars
Runs4Funds is a fundraising initiative founded by Northamptonshire Steelbacks all-rounder, Steven Crook, that was born following an emotional meeting with two inspirational parents of Northampton-born, Lewis Herbert.
Lewis and his family’s story was covered in the local newspaper, where they spoke of their efforts to recruit fundraisers to help raise enough money to provide much-needed facilities and equipment for 12 year old LGS-sufferer, Lewis.
Throughout the 2015 season, Steven supported the A Life For Lewis Appeal by helping raise nearly £5,000 towards a much needed sensory garden for Lewis to enjoy. Read more.. Summer 2015 - Steven Crook Runs4Funds
Quiz question: in cricket what does DRS stand for.. Read more.. Sept 2016 - Rushton Cricket Club Donation
The amazingly thoughtful, kind, and talented Jonny Cooke has written and produced a song for me.
How cool am I to have a song all of my own!.
This is so personal and special to me, and my Mummy and Daddy. Read more.. A Song for Lewis by Jonny Cooke
"We've had such an amazing day/night #livemusicforlewis #thomasabecket #charityday #raisedabout £600.00"
Richard Coys Cutler
Landlord of the Thomas-A-Becket Pub
Read more.. May 2016 - Thomas-A-Becket Pub Music Night Fundraiser
Thank you so much to the Wicken Conservation Society (WCS) for all their efforts in arranging the treasure hunt etc on Saturday. Read more.. Oct 2015 - Wicken Conservation Society
Thank you so much Michael Ratcliffe for arranging the golf day last Friday for Life for Lewis which raised an amazing £801.40.
Read more.. July 2015 - Ratcliffe's Golf Day, Deanshanger
It's the taking part that counts not the winning.. Read more.. July 2015 - Horton Cricket Reunion Match
Rushton Hall Spa raise £420.00 for the “Life for Lewis Appeal” Read more.. June 2015 - Rushton Hall Spa Donation
A Real Test Match Special.. A Signed Jimmy Anderson England Cricket Shirt
Read more.. May 2015 - Jimmy Anderson Test Match Shirt Auction
This is the ultimate "Howzat Appeal for Life for Lewis" ! Read more.. April 2015 - Howzat Appeal (Northampton Cricket Umpires Donation)
A 'Full House' was had by all.. Read more.. March 2015 - Family Fun Bingo (West Hunsbury)
Massive thank you to Patrick Latham (3rd Man Cartoons) for designing and providing my “Life for Lewis shirts”, they looks absolutely stunning.
Read more.. Feb 2015 - Life for Lewis T-shirts Designs
Wow! or should I say woof ! Read more.. Jan 2015 - Wicken Dog Walk
Personal challenges people have done for Lewis over the years.. Read more.. Various Personal Fundraising Challenges
To get involved and help fundraising for Lewis please contact us