Life for Lewis Appeal

Raising money for various disability specific items and equipment

Welcome To Lewis' Website

Life for Lewis Appeal

Hi, my name is Lewis Herbert

Thank you so much for visiting my site.

During 2015 we raised enough money for my dream of a wheelchair accessible/sensory garden at home.  Thank you so much to each and everyone of you who donated towards my new garden it's absolutely amazing, and I can now access my garden in my wheelchair and spend quality time together with my Mummy, Daddy, sister and brother all together in our back garden, something which I have never been able to do.  

Full details about the sensory garden can be found in the fundraising projects section of the website

My Mummy and Daddy have decided to continue fundraising for me as unfortunately due to my complex disability I am always going to need various disability specific items and equipment which are not available to me through standard NHS provision. The majority of the items are a necessity due to my extremely complex disability and condition.

Raising money for various disability specific items and equipment Life for Lewis Appeal

Please find below items which we have already raised the funds for and which are already making a huge difference to my quality of life.

  • Wheelchair Accessible/Sensory Garden  (Target achieved and item supplied) - Approx cost = £25,000
  • New suitable manual Chunc wheelchair (Target achieved and item supplied - Approx cost = £5000
  • New suitable seat for my Mustang electric wheelchair (Target achieved and item supplied) - Approx cost = £1000
  • A suitable ipad with mounting wheelchair arm/s and sensory/cause and effect applications (Target achieved and item supplied) - Approx cost = £1100
  • Eye gaze communication system - Including look to learn and Sensory Eye FX software (Includes an all-in-one PC, screen, USB eye tracker,  and mounting trolley on wheels) (Target achieved and item supplied) - Approx cost = £4000
  • Deposit for a suitable wheelchair accessible and fully adapted Motability vehicle (Target achieved and item supplied) - Aprox cost = £12,000

Raising money for various disability specific items and equipment Life for Lewis Appeal

Items currently raising funds for:

  • Therapy/Companionship Dog and appropriate training (To be my companion and best friend, and to sit on my lap and also alongside me in my wheelchair and soft room (so I can feel it's warmth), this would have a calming influence on me).
  • House Adaptations/alterations - Any items and works required to help me safely access the downstairs of my house in my wheelchair as I'm getting bigger and so is my wheelchair!.  Also any necessary adaptations/alterations required in my house, to allow my Mum and Dad and carers to continue to look after me at home due to my complex condition and severe seizures.
  • New Wheelchair Accessible Front Door with Low Threshold and suitable fixed ramp to allow safe access to and from my house as my Wheelchair has got bigger as I'm growing!.
  • New replacement floor mats for my sensory room as they have worn and will need replacing soon as it's becoming more and more difficult for my mum and dad, and carers to safely walk on them to provide me with all my care needs.
  • A new built bedroom/storage room as close as possible to my bedroom. This will be for my mum and dad and carers to be close to me overnight to provide oxygen and VNS therapy as well as looking after me and making sure I'm safe whilst having seizures. The room will have a single bed in it for my mum and dad and carers overnight. The room is also required as I now have so much specialist equipment and medical supplies, food etc that my Mum and Dad need more space to store it as there is no room left in my bedroom !.

    I would be so very grateful if you were able to help me try and reach my current targets and dreams. 

    To Donate please use my Tree of Hope fundraising page

     Love
       Lewis x

Me using the Eye-Gaze System at School
   

Life for Lewis Appeal


Our Special Boy.. Lewis Robert Herbert

Lewis Robert Herbert was born on the 12th November 2002 at 12:20am weighing a healthy 8.2lbs.

After keeping us waiting for a 34 hour labour and being rushed out by the consultant as he was getting distressed. Our 1st baby was here and we couldn't wait to start our family life. The next chapter for Gary & I. He was the most beautiful thing we had ever seen. We had so many dreams and hopes for our little boy. Read more.. Our Special Boy



Raising Money For Various Disability Specific Items, Equipment, And Home Adaptations/Alterations Which Are Not Available To Me Under Standard NHS Provision. To get involved and help fundraising for Lewis please contact us

Life for Lewis Appeal

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