About Lewis and the Life for Lewis Appeal

Raising money for various disability specific items and equipment

Our Hero, A Song for Lewis by Jonny Cooke

Our Hero A Song for Lewis by Jonny Cooke

The amazingly thoughtful, kind, and talented Jonny Cooke has written and produced a song for me.

How cool am I to have a song all of my own!.

This is so personal and special to me, and my Mummy and Daddy.

A Song for Lewis Our Hero A Song for Lewis by Jonny Cooke

Please click here to download my song and to donate to my appeal

A massive thanks as well to Lisa Littlejohn West and Gabriel Vanore for working with Jonny on my Song x.

Hope you like it.

Much Love Lewis x

Our Hero Our Hero A Song for Lewis by Jonny Cooke


So who is this Jonny dude ?

Originally from the UK and now living in Ireland. Jonny has been writing music for over 20 years, he has always enjoyed singing although he never picked up a guitar unti he was in his early 20's. His music falls into folk/indie/rock category all depending what mood he's in when writing a song, about everyday life, love, hurt, happiness..

More details visit Jonny Cooke's website

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A Song for Lewis
   

Our Hero A Song for Lewis by Jonny Cooke


Back to.. About Me.. Lewis Herbert

My name is Lewis Herbert and I was born in 2002. I was diagnosed with West Syndrome at 3 months of age.

This has since developed into a condition called Lennox Gastaut Syndrome (LGS). LGS is a rare and extremely severe form of epilepsy with multiple seizure types. It causes severe global developmental delay.

I can have 100’s of different seizures every day and my condition is resistant to any medication or therapies which have been tried. Find out more about Me


Our Special Boy.. Lewis Robert Herbert

Lewis Robert Herbert was born on the 12th November 2002 at 12:20am weighing a healthy 8.2lbs.

After keeping us waiting for a 34 hour labour and being rushed out by the consultant as he was getting distressed. Our 1st baby was here and we couldn't wait to start our family life. The next chapter for Gary & I. He was the most beautiful thing we had ever seen. We had so many dreams and hopes for our little boy. Read more.. Our Special Boy



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About Lewis and the Life for Lewis Appeal

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